2024 Events
Fundraising and Awareness Campaign
May 2024
Follow along on Instagram @thisiscoopersstory
Year 5 Run With Coops!
October 4-6, 2024
Join our Community Social, Kids 1K and 5th Anniversary Celebration: Sun. Oct. 6th 10:30am | Southward Park, Grimsby ON
Past Events
2023 SickKids Donation Presentation
One our favourite days of the year – we once again met in December 2023 with SickKids Foundation and SickKids TSC Clinic, this time with a cheque for $80,000! We had many members of Cooper’s Crew, alongside other TSC families which made it extra special.
Hearing the incredible impact donor dollars are having – never seizes to amaze us. Donor funds exclusively fund the Nurse Navigator role in the TSC clinic, directly benefiting patients and families. Funds also allowed key team members to attend the TS Alliance conference to learn and network with key North America TSC contacts.
Funds have allowed for an increased scope of TSC Research. The TSC Registry has increased to 99 children, which will help with future clinical trials, grants, and industry partnerships. Donor dollars have allowed SickKids TSC Clinic to be the key leader across the Ontario TSC Network, creating a community alongside other TSC Clinics.
We are so proud of the impact & support of Cooper’s Crew – we can’t wait to see what we can do in 2024!
2023 #RunWithCoops
It was the 4th Annual Run With Coops on October 20-22, 2023!
An INCREDIBLE crew of 100+ adult participants and 100+ children completed distances from 1km to a full marathon. With the 530+ unique donations, we (once again) hit our fundraising goal raising $55,000 for the SickKids TSC Clinic!
Our Community Social and Kids 1K was attended by 150+ of Cooper’s Crew. We had an amazing day, socializing, celebrating, watching the Kids (wearing their super fun blue CRF toques) run their 1K, AND hearing from SickKids Dr. Elizabeth Donners and the impact donor dollars are having on the TSC Clinic.
We could not have done this without our amazing 15 (!!) corporate sponsors (7 rainbow sponsors), our fellow TSC families and their own crew, supportive local businesses and every individual who donated or participated. We are so proud and appreciative.
Thank you Cooper’s Crew and we cannot wait for Year 5!
2023 Salesforce Golf Tournament
We were (once again!!) supported by the incredible Salesforce team at their annual Slam Golf Tournament!
We still remember the day back in 2019 when we were invited to our first Slam. CRF was still in launch-mode, and boy did we feel lucky to have Salesforce help us kick things off!
The incredible thing is that sing 2019, the support from Salesforce has continued. Salesforce has been the single biggest contributor to CRF!
In the September 2023, we were able to stand in front of the Salesforce Crew and share an update on CRF, the SickKids TSC Clinic and Coops. And most importantly, we got the change to say the biggest THANK YOU!
2022 SickKids Donation Presentation
In December 2022 we met virtually with SickKids Foundation and SickKids TSC Clinic to present our biggest donation yet!! A cheque for $105,000! It was all because of the amazing teamwork and support of you – Cooper’s Crew!
It was amazing to hear of the real impact these donor dollars are making! Now serving over 100 children, the clinic has been able to expand their team with additional staff.
Donor dollars have continued to allow more children (currently 88) to enroll in the TSC Clinic registry. This allows comprehensive registry data to be studied to improve care and also allows the clinic to have patients’ critical data on hand when clinical trials become available.
Donor dollars also funded the first ever Ontario-wide TSC symposium. The symposium brought together multi-disciplinary TSC professionals to identify goals around advocacy, research, education and clinical care. They were then able to set out plans to help achieve those goals. We can’t wait to share updates on this moving forward!
2022 #RunWithCoops
On the weekend of October 21-23, CRF kicked off their 3rd annual #RunWithCoops!
Our CREW of 150+ runners and 100+ children wore blue for TSC and completed distances from 1km to a full marathon. We (once again) surpassed our fundraising goal thanks to an incredible Crew which raised $55,000 for the SickKids TSC Clinic.
We were so fortunate to be able to host an in-person Community Social in conjunction with our Kids 1K this year. On a beautiful Fall day, we had over 130 of Cooper’s Crew gather together to celebrate, run and socialize.
Thanks to our 15 (!!) amazing corporate sponsors, fellow TSC families and their own crew, supportive local businesses, our local school who joined in and each and every individual who donated or participated. We are so grateful!
Thank you Cooper’s Crew – we look forward to next year!
2021 SickKids Donation Presentation
In December 2021 we had the opportunity to virtually meet with SickKids Foundation and SickKids TSC Clinic and present a cheque for $50,000! Cooper’s Crew – again, this was all because of YOU!
These funds are making a difference! Because of donor dollars the TSC Clinic has been able to add additional staffing to the TSC clinic, including the Patient Navigator role. This resource is able to streamline appointments and services and also provides education for TSC families – both 1:1 and also from a resource perspective, including virtual lectures. Additionally, these donor dollars have increased the Research capabilities for the TSC Clinic, which has focused on increasing the data registry through recruitment and collecting quality data which allows for more accurate and valuable research studies.
2021 Grimsby Christmas Parade
When Cooper was asked to be the 2021 Grand Marshall for the Grimsby Christmas Parade, we really couldn’t say no! Cooper, alongside some friends and family were able to lead the route for the entire parade! Cooper loved every minute of it.
We can’t thank the Town of Grimsby enough, for thinking of Cooper and the Cooper Robertson Foundation.
2021 #RunWithCoops - Hamilton Marathon Road2Hope
On the weekend of November 6-7th, CRF joined forces with the Hamilton Marathon Road2Hope for the 2nd annual #RunWithCoops!
Our CREW of 100+ runners and 100+ children showed up wearing blue for TSC and completed distances from 1km to a full marathon. We were (again) blown away by the team effort of Cooper’s Crew. It was another amazing accomplishment as we surpassed our fundraising goal, raising more than $44,000 for the SickKids TSC Clinic.
A few highlights from this year also included having fellow SickKids TSC Clinic families join our Crew, having Corporate Sponsors step up with tremendous support and being able to have a group of ambitious kids join Cooper for the Kids 1K. It was a true sense of community.
Way to go Cooper’s Crew!
2020 SickKids Donation Presentation
In December 2020 we had the opportunity to virtually meet with SickKids Foundation and SickKids TSC Clinic and present a cheque for $60,000! Cooper’s Crew – this was possible because of all of your love and support!
These funds are making a difference! Because of donor dollars the TSC Clinic will be adding a Patient Navigator role to the team. The Patient Navigator will support families in scheduling and coordinating appointments, as well as ensuring tests are timely and properly sequenced. This team member will also act as a resource for families and the community to provide education, support and coaching.
This role has been a priority for the TSC Clinic and will have a tremendous impact on patients and their families! So excited for what’s to come!!
2020 #RunWithCoops - Hamilton Marathon Road2Hope
On the weekend of October 31, 2020, CRF joined forces with the Hamilton Marathon Road2Hope to #RunWithCoops!
Our CREW of 80+ runners and 55+ children showed up wearing blue for TSC and completed distances from 1km to a full marathon. This was, in the deepest way, a team effort as each Crew member connected us with their own family and friends and TOGETHER we accomplished something unbelievable. We received over 450 unique donations and as a TEAM we raised over $38,000!?! More than 3X our original goal!
Cooper also completed the most inspiring (and speedy) 1KM walk – with a smile on his face the entire way. We felt so much love and support from near and far the entire weekend.
Way to go Cooper’s Crew!
2019 SickKids Donation Presenation
Being the inaugural year of the Foundation, we were especially excited to be able to meet with SickKids Foundation and SickKids TSC Clinic and present a cheque for $32,000! This money will go directly to the TSC Clinic, towards priority initiatives like reducing wait times, hiring a Patient Navigator role, and further developing SickKids TSC Research Database. We are so excited to continue this momentum into next year.
2019 Foundation Launch Celebration
What a day! On October 27th 2019, alongside so many friends and family, we were able to celebrate the official launch of the Cooper Robertson Foundation. It felt like such a good day and such a great start. We were overwhelmed by the amount of incredible support and genuine interest that was felt in the room. The Foundation has already had a start that has exceeded so many expectations and we cannot wait to continue to drive awareness and funds for Tuberous Sclerosis Complex and the SickKids TSC Clinic.
2019 Salesforce Golf Tournament
The Cooper Robertson Foundation had a start that we could have never (ever) dreamed of! We were lucky enough to be the key charity for the 2019 Salesforce Golf Tournament. Our friend Mark and the amazing Salesforce team stepped up to raise funds for us as we were just getting started. We were able to help kick off the day by bringing awareness to Cooper’s story and TSC as well as saying a heartfelt Thank You. This day will forever hold a special place in our hearts. Thank you Salesforce!
